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Hearing loss - ? caused by the RA or by my drugs? Any ideas? Options
Sally B
#1 Posted : Monday, December 17, 2012 2:15:06 PM Quote
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Hi all. I've been having trouble picking out speech for some time, esp if there is background noise, and in fact had what I was told was a normal hearing test at the hospital a ferw years ago when this first started ( 10 years ago I had extremely good hearing - I was tested to check I was OK to do hearing tests on children as part of my then work as a Community Paediatrician)

To save the embarrassment of going to the hospital only to be told all was normal again, I went to have a free test at Specsavers ( who offer NHS follow up here in Hereford)

Somehow in the last 2 or 3 years I have gone from having OK hearing to having a 35 dB notched loss ( bottom of norlmal is 20/25) at 6k HZ on the right & the same but only 25 on the left, plus 'reveerse slope' mild hearing loss gradually getting worse with lower frequency - in both ears - not yet needing aids but distinctly worse than my hearing used to be.

The only cause I can think of is my RA & /or the drugs ( on Methotrexate since 2007 & Rituximab since Sept 2010) but I can't find anything helpful incl on medical websites
- don't get me wriong, even if it is the drugs, the relief from finally getting my RA under control is worth it, but it is all a bit unexpected - & difficult with my family who think I've been ignoring them & not listening hard enough! I have no family history of sensorineural hearing loss or history of significant noise exposure (and I'm only 47)

Anyone any similar stories?

Thanks!!
Dorothy-W
#2 Posted : Monday, December 17, 2012 3:14:58 PM Quote
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hi sally,i suffer from tenitus and blame it on the meds but i have had a hearing test and mri scan about a year ago,am pleased to say all is very well for me but i have been poorly recently and my hearing went totaly for 3 days and now i am in a dull world,i am going to gp this week so hoping its this cold virus thats causing it all, sorry cant help maybe one of the others can help,good luck,dorothy
Sally B
#3 Posted : Tuesday, December 18, 2012 1:22:35 PM Quote
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Location: Little Dewchurch, Hereford
Thanks Dorothy - fortunately I don't have any tinnitus (that would really drive me mad!- so poor you) just things sound muffled & I mishear what people say or even don't notice if there is background noise.
sylviax
#4 Posted : Wednesday, December 19, 2012 8:13:15 AM Quote
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Hi Sally - so sorry that your hearing is not so good. I'm 55 and have noticed that I need the TV turned up a bit louder - I suppose it's me getting older. But 47 is rather young to be having that problem. My hubbie regularly loses his hearing because he gets a build up of wax - I think it must be the shape of his ears, because he claims to clean them properly!! But everything few months he goes deaf in one ear and has to make an appointment to have them syringed by the nurse (euch!). He's Mr Grumpy when he goes in and comes out as Mr Happy!! But I don't suppose that's your problem because the exam would've shown that up - hope that you find something to help.

I love your cat - is it a British Blue?

Cheers - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
Jane-o
#5 Posted : Wednesday, December 19, 2012 12:16:53 PM Quote
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Hi Sally

I am really interested in your comments about your hearing loss. I have found that my hearing is deteriorating and have a hissing sound in my ears, also the TV volume is constantly being turned up and I keep asking my husband "what did they say. Some weeks ago we went to a largefamily get together for lunch where there were relatives I don't see very often - I found that unless I was looking directly at their faces and really concentrating on what they were saying I could not hear the conversations and had to say I'm sorry I didn't hear what you said especially if anyone turned their head - I feel my head is in a bucket. I have been taking MTX for nearly four years and Planquinel for about 5 months, it is great that my RA is under control but I'm finding my hearing loss is becoming quite a problem.

Can anyone advise me what route i should go down to get my hearing tested.

Jane x
JulieM
#6 Posted : Wednesday, December 19, 2012 1:14:07 PM Quote
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I too found I was struggling to hear conversation in a room with b/g noise (eg the staffroom at school etc) I went for tests and subsequently started to wear two hearing aids about 2 years ago. I am on MTX and Humira, diclofenac and cocodamol. Don't know if it is caused by RA/drugs or with working in a noisy environment (think 150 schoolchuildren screaming in an enclosed space at lunchtimes!)


Jane you need to approach your GP who will see if you need them syringing and if not he can refer you to a specialist.
YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
Jane-o
#7 Posted : Wednesday, December 19, 2012 1:48:41 PM Quote
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Thanks Julie - I wll make an appointment with my GP and go from there

Tanks again

Jane x
Dorothy-W
#8 Posted : Thursday, December 20, 2012 11:51:48 AM Quote
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hi again, jane start at the gp and tell him exactly what you hear,what time of day/night,how bad and how often ie diary time,i have learned to lip read a bit to keep upto conversation,due to the fact that i get a feeling of being in a swimming pool full of kids and it just garbles in my head,i do tend not to get into loads of people places now as i just loose the plot and its not very nice,i have been shouted at for not paying attention but i dont feel like saying sorry gone a bit jeff there,i also don't use the phone after about 8pm as it starts my ear off big time,good luck,dorothy
zena_mary
#9 Posted : Friday, December 21, 2012 4:26:19 PM Quote
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Hi all,
I have a big hearing loss in L ear, caused by ear infections as a child.
My hearing has become worse in the last few years in both ears, now have 2 aids.
Unsure whether this is due to ra or not.
Recently I have been going to and fro to gp with Eustachian tube disfunction in my R ear, basically the air pressure on either side of the eardrum shoud be equal but mine isn't so my ear keeps feeling as though it is blocked.
I've tried steroid nasal drops but hasn't worked so have app to go back soon, wondering if this may be related too.
Hearing loss can make you feel isolated in a group situation, and embarrassing when you keep having to say Pardon!!
I have tinitus too, and when I am unwell it gets much louder, wondering if its the same for you Dorothy?
Zena xx
Sally B
#10 Posted : Saturday, December 22, 2012 11:04:45 AM Quote
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Thanks all - no I don't have any wax - my ears look fine! I had my 2nd dose of my 5th lot of rituximab yesterday and saw my lovely Rheumy consultant so gave him a copy. He had even less of an idea than me but said unlikely to be autoimune sensorineural hearing loss as as far as he knows, that is sudden and something you should go straight to your doctor about if it happens as steroids can help if given quickly enough. Mine is gradual though. He said you can get RA in your ossicles ( the little bones in your inner ear) but wondered if that would cause the sort of problem I have

Anyway he has suggested the best ENT Consultant for me to see as the one he recommended wold actually think about RA not just my ears! So off to get my equally lovely GP to sort that out for me.

I used Specsavers to get a quick private ( free!) test just to see if i was still having only minor problems & to save the embarrassment of going again & looking neurotic if it was still the same - hopefully it will also get me seen a bit quicker that if I'm referred as ' this patient whose hearing was fine 3 years ago now thinks her hearing is worse can you see her again?'
They also suggested turning up the treble & turning the bass down on the Tv and any radio where you can do this - which has helped although the family don't like it! Plus listening to Radion 4 speech programmes esp those without background music to practice 'tuning in' to help dela with the problem. Worth a try anyway

Will update you when I am seen
Sally xx

PS Sylvia - Oddie (aka Big Fat Oddie Cat!) is a blue Burmese - his brother Cosmo is brown, like our first pair of cats Homer & Razzy who were an engagement pressie form my mum - the best engagement present ever!
(Oddie is really Odyssey, named in remembrance of Homer, & Razzy was Erasmus! Cosmo was chosen by our daughter Josie 9 years ago)
We never anticipated having any colour other than brown, but ther was only one brown in the litter born locally - we are now hooked on Burmese as being so much moer fun, & dog-like chid 7 bomb-proof without needing walking. My cousin had a little brown grl burmese who lived to 23! who was the reason we got hooked)

sylviax
#11 Posted : Saturday, December 22, 2012 11:15:32 AM Quote
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Hi Sally - Oddie looks gorgeous. We used to have 2 british blues and their brother who was black and didn't look anything like a true british, but sadly they are all gone now. We still have 2 lovely black and white moggies called Dipstick and Raindrop. Raindrop is an honorary girl - we got them when my eldest son and daughter were little and we thought the cats were boy and girl too, hence the names! Imagine our surprise when we took them to be neutered and discovered the truth!! Ha ha. Anyway, Rainy has remained a "girl" to this day (14 years later!).

Misty our Cavalier king charles is coming into season, and she's started getting very broody and possesive - the cats had a hard time last night because Misty was guarding the presents undr the Xmas tree, and everytime the cats came near she chased them away!! Lots of hissing and high speed running - keeps them all fit! I wonder what will happen on Christmas day when there'll be even more to guard - will she let us get near to unwrap her "puppies"???

Have a good one - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
Dorothy-W
#12 Posted : Sunday, December 23, 2012 10:15:42 AM Quote
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zena,thanks for the info sounds like it could be the same,i will make a note and ask at my next appt,it is so nice in a funny way that someone can understand what i am trying to say,cheers,dorothy
jenni_b
#13 Posted : Wednesday, December 26, 2012 11:43:34 AM Quote
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hello sally,

i think the ra can effect the hearing

but im reminded of a lady i met in bath rheumatic disease hospital

she has this

http://www.nlm.nih.gov/m...ency/article/001573.htm

but there are several things Ive spotted that link RA and hearing loss although you are no more likely to develop hearing loss with the ra than without, although it does seem to be a complication of the ra

http://www.newswise.com/...se-risk-of-hearing-loss

Ive often got a blocked feeling in my ear and a sort of in an airoplane feel, i think this is about the jaw, and joints around it.

much love at christmas, hope things ease with treatment

love

jenni x
how to be a velvet bulldoser
Sally B
#14 Posted : Wednesday, January 09, 2013 8:20:26 PM Quote
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Obviously a lot of us out there with problems! I now have an ENT appt for the end of Feb so will update you then. In the meantime the chap at Specsavers suggested turning up the treble (or 4KHZ if ther is a graphic equlizer) & turning down the bass. This is actually very helpful (though the rest of the family complain that the TV sounds 'tinny!') - I don't need the actual volume up so high ( if very loud it seems to almost hurt my ears making it counter-productive)
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